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Support Group    What Is CFS?

The American Association for Chronic Fatigue Syndrome
National Institute of Allergy and Infectious Diseases
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Support Groups Resources

 

Recommended Reading

A very helpful workbook  which  contains the spectrum of pain control measures as
well as information on the nature of pain itself.

The Chronic Pain Control Workbook Ellen Mohr Catalano and Kimeron N Hardin, 1996.

Your support system. How does your illness impact others, including your
doctor and your family and friends? What emotional changes can you expect in your own life?
Here's where you learn how to deal with the changes is a positive manner.

Be Sick Well; A Healthy Approach to Chronic Illness Jeff Kane, 1991.

This is a book about the mind/body connection, and what you can do to integrate the two parts of
this in spite of a chronic pain condition. These methods are good options to raise the quality of
your life without adding extra medications.

Freedom from Chronic Pain : The Breakthrough Method of Pain Relief Based on the New
York Pain Treatment Program at Lenox Hill Hospital by Norman J. Marcus, Jean S. Arbeiter

This is a book about the changes chronic illness brings into your life, and we accept and adapt.
There is an extensive chapter on caregivers, a chapter on sex, and a chapter on adapting your
house and environs to your needs. This book even has cartoons!

We Are Not Alone: Learning to Live with Chronic Illness by Sefra Kobrin Pitzele

This book uses personal stories to illustrate a variety of chronic invisible illnesses. It may give your
family and friends a "bird's eye-view" of just what you deal with every day.

Sick and Tired of Feeling Sick and Tired by Paul J. Donoghue Ph.D and Mary E. Siegel, Ph.D.

Taking Control of TMJ: Your Total Wellness Program for Recovering from 
Temporomandibular Joint Pain, Whiplash, Fibromyalgia and Related Disorders" by Robert
O. Uppgaard DDS. Paperback - 176 pages (March 1999) New Harbinger; ISBN: 1572241268

The Depression Workbook: A Guide to Living with Depression and Manic Depression by
Mary Ellen Copeland, MA, 1992 New Harbinger Publications

Winning Against Relapse by Mary Ellen Copeland. A Workbook of Action Plans for Recurring
Health and Emotional Problems, 176 pages (April 1999) New Harbinger Pubns; ISBN:
1572241306 

Living Without Depression and Manic Depression Mary Ellen Copeland, MA, 1994.

The Relaxation and Stress Reduction Workbook by M. Davis Ph.D, E. Robins Eshelman
MSW and M. McKay PhD, 1995

If you want to understand the mechanics behind sleep, dreams and biological clocks, read this
one: The Enchanted World of Sleep by Peretz Lavie, Dean of the Faculty of Medicine at the
Technion--Israel Institute of Technology in Haifa.

Lack of restorative sleep is a major perpetuator of both fibromyalgia and myofascial pain
syndrome. This is the best book I found that both explains sleep and sleep disorders and then
helps you identify the factors that are affecting your quality of sleep.

Getting to Sleep : Simple, Effective Methods for Falling and Staying Asleep, Getting the
Rest You Need, and Awakening by Ellen Mohr Catelano

I found the Brassell book a valuable resource for attitude adjustment and neutralizing negativity and isolation that so often comes when chronic invisible disease is part of your life.
Belonging: A Guide to Overcoming Loneliness by William R. Brassell, Leslie Tilley (Editor)

Coping with College (section on learning disabilities)

Making Changes: Family Voices on Living with Disabilities by Jan A. Spiegle (Editor),
Richard A. Van Den Pol, 1994

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